Thursday, September 29, 2011
The "It" has a name.
We put her through extensive testing. When the Doctor talked to us as a couple and asked me if I felt bonded with her, I cried as I admitted “no, not at all.” And it isn’t because we got her later, it isn’t because we aren’t trying, it is because “It” controls her from bonding, she isn’t capable….YET! We’ve more work to do and we won’t give up. We are at a new line with the gun going off as the new race has begun. This time the blindfolds are off.
What does a title mean? It means we can research the correct way, it means we can study and learn to parent a R.A.D. child. Does it mean it will be easier? No, but we’re making headway with proper support and professional help to assist our family in dealing with this demon, and yes it is a demon, that has been pulling at the roots of our family.
If we hadn’t had the years of marriage to cement us, I can see how this can tear family apart. There is no “normal” anymore, we are tired, weary, stressed, controlled and pulled in directions we’ve no control over. NOW we can fight back with the knowledge of “It” with learning and growth.
A hard part has been to see our other children suffer too when the violence comes and sometimes is directed at them. I will NOT allow them to be hurt, we will draw the line in the sand on safety. That said, they need tools too to learn about this and know why their sibling does what she does, says what she says. Their education will allow them to be able to cope as well. We will find ways to give them respite and importantly, take respite ourselves so we can handle the waves that come sometimes gently, sometimes in tsunami force.
A book I just finished called “We adopted a Dusty Miller” was like reading something I could very well have written myself in a lot of ways, while there are differences, there are many similarities and I’d suggest anyone who wants to learn more about “It” read this book as a good start. There are two more books on the counter that we will be reading. If you have life experienced advice or good web sites / books / resources you’ve used please share in comments. If you don’t want it published, just let me know.
So, prayers and support are needed. We walk this walk….God has a purpose and direction for us even though we didn’t dream of this direction, we embrace what God has placed before us and as His servants will strive with His help to make it through this and grow in new ways.
Time for me to indulge in some more Dove Chololate therapy and HGTV!
These were her teeth BEFORE: These are her teeth AFTER: Late summer of 2009 these metal train tracks appeared on her teeth for serio...
LD. Learning Disabled. The label. The problem: Reading. She is SOOO smart, sensitive, caring and bright. But READING is her most diffic...
School Year 2011 – 2012 Ends today! Yahhhhhhhhhhhhhhhhhhhhh I don’t know who is happier, the kids or the parents! I will love it wh...